Family Conference Agenda

Agenda as of 5/22/2026. Subject to change. All session times are in Mountain Time (MT).

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Date Time Name More Info
Wednesday, July 29, 2026
Wednesday, July 29, 20269:00 AM - 9:00 PMASF Sensory Space and Play Zone
Wednesday, July 29, 202610:00 AM - 6:00 PMASF Family Conference Registration & Information Desk

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Date Time Name More Info
Thursday, July 30, 2026
Thursday, July 30, 20267:00 AM - 4:30 PMNatural History Study Visits
Thursday, July 30, 20268:00 AM - 5:00 PMChromosome 15 Clinic Consultations with Dr. Walleigh, Children's Hospital Colorado
Thursday, July 30, 20268:00 AM - 6:00 PMASF Family Conference Registration & Information Desk
Thursday, July 30, 20269:00 AM - 9:00 PMASF Sensory Space and Play Zone
Thursday, July 30, 20269:00 AM - 9:00 PMPrivate Changing Area (Available Accommodation - All Ages)
Thursday, July 30, 202610:00 AM - 11:00 AMNewly Diagnosed Networking & Genetics Information Session
Thursday, July 30, 202610:00 AM - 5:00 PMProtected Tomorrows: Future Care Planning
Thursday, July 30, 202610:00 AM - 5:30 PMASF Exhibitor Fair
Thursday, July 30, 202610:15 AM - 4:45 PMPrivate IEP Consultations with Staci Zimmerman, M.Ed
Thursday, July 30, 202610:45 AM - 2:15 PMPrivate Counseling Sessions with Shannon Barlow, ASF's LCPC
Thursday, July 30, 202611:00 AM - 12:00 PMPowering Progress: Advocating for Angelman Syndrome
Thursday, July 30, 202612:15 PM - 1:15 PMFamily Conference Lunch on Your Own
Thursday, July 30, 20261:00 PM - 4:45 PMSibShop
Thursday, July 30, 20261:30 PM - 3:00 PMJust for Dads Social
Thursday, July 30, 20261:30 PM - 3:00 PMMusic Therapy for Individuals with AS (Max 1 Per Day)
Thursday, July 30, 20263:00 PM - 4:30 PMJust for Moms
Thursday, July 30, 20263:00 PM - 4:30 PMMusic Therapy for Individuals with AS (Max 1 Per Day)
Thursday, July 30, 20263:15 PM - 4:45 PMOne-on-One Behavior Consults with Dr. Chris Keary
Thursday, July 30, 20264:30 PM - 5:30 PMAS Natural History Study 20 Year Celebration
Thursday, July 30, 20264:30 PM - 5:30 PMJust For Grandparents
Thursday, July 30, 20265:30 PM - 8:30 PMCamp SOAR – Family Welcome Reception

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Date Time Name More Info
Friday, July 31, 2026
Friday, July 31, 20267:00 AM - 7:00 PMNatural History Study Visits
Friday, July 31, 20267:30 AM - 5:30 PMASF Family Conference Registration & Information Desk
Friday, July 31, 20268:00 AM - 5:00 PMChromosome 15 Clinic Consultations with Dr. Walleigh, Children's Hospital Colorado
Friday, July 31, 20268:00 AM - 5:00 PMASF Exhibitor Fair
Friday, July 31, 20268:30 AM - 5:00 PMProtected Tomorrows: Future Care Planning
Friday, July 31, 20269:00 AM - 9:45 AMTogether We SOAR: Rising Toward a Brighter Future, ASF's Opening Session
Friday, July 31, 20269:00 AM - 12:00 PMBIG SIB BASH
Friday, July 31, 20269:00 AM - 9:00 PMPrivate Changing Area (Available Accommodation - All Ages)
Friday, July 31, 20269:00 AM - 9:00 PMASF Sensory Space and Play Zone
Friday, July 31, 20269:15 AM - 12:15 PMOne-on-One Behavior Consults with Dr. Chris Keary
Friday, July 31, 20269:30 AM - 12:15 PMPrivate IEP Consultations with Staci Zimmerman, M.Ed
Friday, July 31, 20269:30 AM - 4:15 PMPrivate Counseling Sessions with Shannon Barlow, ASF's Licensed Clinical Professional Counselor
Friday, July 31, 20269:45 AM - 11:00 AMPipeline to Progress: Angelman Syndrome Therapeutics & Clinical Trial Updates
Friday, July 31, 202611:00 AM - 11:45 AMThe Importance of Powers of Attorney for Parents and Caregivers Session
Friday, July 31, 202611:45 AM - 12:45 PMThe Importance of Powers of Attorney for Parents and Caregivers Workshop
Friday, July 31, 20261:00 PM - 2:00 PMMusic Session for Siblings: ages 5–7
Friday, July 31, 20261:15 PM - 1:45 PMAS Grows Up: Navigating Transitions at Every Age
Friday, July 31, 20261:15 PM - 2:00 PMEstate Planning Essentials and Guardianship/Conservatorship Options Session
Friday, July 31, 20261:55 PM - 2:25 PMAngelman Healthcare for Young Adults
Friday, July 31, 20261:55 PM - 2:25 PMAngelman Healthcare for Adolescents and Teens
Friday, July 31, 20261:55 PM - 2:25 PMAngelman Healthcare in Adults (ages 30+)
Friday, July 31, 20261:55 PM - 2:25 PMAngelman Healthcare in Childhood
Friday, July 31, 20262:00 PM - 3:00 PMEstate Planning Essentials and Guardianship/Conservatorship Options Workshop
Friday, July 31, 20262:15 PM - 3:15 PMMusic Session for Older Siblings (Ages 8–11)
Friday, July 31, 20262:30 PM - 5:00 PMInclusive and Adaptive Recreation Expo (featuring Red Ball Tennis)
Friday, July 31, 20262:35 PM - 3:05 PMMeet Medicare, and other Adult Insurance & Benefits
Friday, July 31, 20262:35 PM - 3:05 PMMiddle School through Graduation, your IEP and transition journey
Friday, July 31, 20262:35 PM - 3:05 PMToileting for Beginners
Friday, July 31, 20263:15 PM - 3:45 PMEveryday Independence: Supporting Skills Where Life Happens
Friday, July 31, 20263:15 PM - 3:45 PMIntroduction to Insurance, Waivers & Funding Opportunities
Friday, July 31, 20263:15 PM - 3:45 PMToileting, Actively Training
Friday, July 31, 20263:15 PM - 4:00 PMABLE Account Creation Session
Friday, July 31, 20263:55 PM - 4:25 PMLeveling Up with Insurance, Waivers, & Benefits
Friday, July 31, 20263:55 PM - 4:25 PMPlay, Practice, Repeat! Growing Everyday Skills for Lifelong Learning in the Early Years
Friday, July 31, 20263:55 PM - 4:25 PMToileting, Regressions and Starting in Adulthood
Friday, July 31, 20264:00 PM - 5:00 PMABLE Account Creation Workshop
Friday, July 31, 20264:35 PM - 5:05 PMEarly Intervention & Elementary School, your IEP journey
Friday, July 31, 20264:35 PM - 5:05 PMDay Programs, Social, and Recreational Opportunities Post-High School
Friday, July 31, 20264:35 PM - 5:05 PMSkills That Grow with Them: Supporting OT, PT, and Communication in Everyday Life
Friday, July 31, 20266:00 PM - 8:15 PMA Special Movie Screening, Paper Bag Plan
Friday, July 31, 20266:15 PM - 7:00 PMAdult Siblings Social, ages 18+
Friday, July 31, 20267:15 PM - 8:15 PMPeople of Color
Friday, July 31, 20268:15 PM - 9:15 PMAdults with AS Mixer

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Date Time Name More Info
Saturday, August 1, 2026
Saturday, August 1, 20267:00 AM - 5:00 PMASF Family Conference Registration & Information Desk
Saturday, August 1, 20267:00 AM - 5:30 PMNatural History Study Visits
Saturday, August 1, 20268:30 AM - 2:30 PMASF Exhibitor Fair
Saturday, August 1, 20268:30 AM - 2:30 PMProtected Tomorrows: Future Care Planning
Saturday, August 1, 20269:00 AM - 9:45 AMSOAR: Inside Today’s Science and Tomorrow’s Research Breakthroughs
Saturday, August 1, 20269:00 AM - 9:45 AMCash Flow Management Session
Saturday, August 1, 20269:00 AM - 10:30 AMSibShop
Saturday, August 1, 20269:00 AM - 2:30 PMPrivate IEP Consultations with Staci Zimmerman, M.Ed
Saturday, August 1, 20269:00 AM - 4:45 PMPrivate Counseling Sessions with Shannon Barlow, ASF's Licensed Clinical Professional Counselor
Saturday, August 1, 20269:00 AM - 9:00 PMPrivate Changing Area (Available Accommodation - All Ages)
Saturday, August 1, 20269:00 AM - 9:00 PMASF Sensory Space and Play Zone
Saturday, August 1, 20269:45 AM - 10:45 AMCash Flow Management Workshop
Saturday, August 1, 202610:00 AM - 10:30 AMClinical Management of Behaviors & Anxiety
Saturday, August 1, 202610:30 AM - 11:15 AMThe Ups and Downs of being an Angelman Sibling with Shannon Barlow, ages 5 - 11
Saturday, August 1, 202610:30 AM - 11:15 AMSibling Next Gen Leadership Kickoff, ages 15-22
Saturday, August 1, 202610:45 AM - 11:15 AMBehind the Behavior: Identifying & Supporting Communication Needs & Sensory Differences
Saturday, August 1, 202611:00 AM - 11:45 AMThe Importance of Powers of Attorney for Parents and Caregivers Session
Saturday, August 1, 202611:15 AM - 12:00 PMThe Ups and Downs of being an Angelman Sibling with Shannon Barlow, ages 12- 18
Saturday, August 1, 202611:30 AM - 12:00 PMBehavioral Approaches and Plans
Saturday, August 1, 202611:45 AM - 12:45 PMThe Importance of Powers of Attorney for Parents and Caregivers Workshop
Saturday, August 1, 20261:00 PM - 1:30 PMThe Relationship Between Cortical Visual Impairment (CVI) and Communication
Saturday, August 1, 20261:00 PM - 4:45 PMOne-on-One Behavior Consults with Dr. Chris Keary
Saturday, August 1, 20261:15 PM - 2:00 PMABLE Account Creation Session
Saturday, August 1, 20261:30 PM - 2:00 PMSeizures & Movement Disorders in Angelman Syndrome
Saturday, August 1, 20262:00 PM - 3:00 PMABLE Account Creation Workshop
Saturday, August 1, 20262:10 PM - 4:00 PMMeet the Neuro Expert - Small Group Sessions
Saturday, August 1, 20262:15 PM - 3:00 PMBeing a Great Communication Partner to Your Loved One with AS
Saturday, August 1, 20263:15 PM - 4:00 PMBeyond the Dental Chair: Practical Oral Care Strategies for Individuals with Angelman Syndrome
Saturday, August 1, 20263:15 PM - 4:00 PMEstate Planning Essentials and Guardianship/Conservatorship Options Session
Saturday, August 1, 20264:00 PM - 5:00 PMEstate Planning Essentials and Guardianship/Conservatorship Options Workshop
Saturday, August 1, 20265:30 PM - 8:30 PMA Night with the Stars – Family Closing Reception