Family Conference Agenda

Agenda as of June 29, 2026. Subject to change. All session times are in Mountain Time (MT).

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  • 🔁 Indicates session is offered multiple times
  • 🎟️ Indicates session with limited capacity. Will fill up quickly!

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Date Time Name Session Type More Info
Wednesday, July 29, 2026
Wednesday, July 29, 20269:00 AM - 9:00 PMASF Sensory Space and Play ZoneSensory Space
Wednesday, July 29, 202610:00 AM - 6:00 PMASF Family Conference Registration & Information DeskRegistration

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Date Time Name Session Type More Info
Thursday, July 30, 2026
Thursday, July 30, 20268:00 AM - 12:00 PMChromosome 15 Clinic Consultations with Dr. Walleigh, Children's Hospital Colorado 🔁ℹ️ (ACTION NEEDED - See "More Info" for registration details)Research
Thursday, July 30, 20268:00 AM - 5:00 PMNatural History Study Visits ℹ️ (View "More Info" for participation details)Research
Thursday, July 30, 20268:00 AM - 6:00 PMASF Family Conference Registration & Information DeskRegistration
Thursday, July 30, 20269:00 AM - 9:00 PMASF Sensory Space and Play ZoneSensory Space
Thursday, July 30, 20269:00 AM - 9:00 PMPrivate Changing Area (Available Accommodation - All Ages) 
Thursday, July 30, 202610:00 AM - 11:00 AMNewly Diagnosed Networking & Genetics Information SessionSocial
Thursday, July 30, 202610:00 AM - 5:00 PMProtected Tomorrows: Future Care Planning 🔁Exhibits
Thursday, July 30, 202610:00 AM - 5:30 PMASF Exhibitor FairExhibits
Thursday, July 30, 202610:15 AM - 11:45 AM*One-on-One Behavior Consult(s) with Dr. Chris Keary🔁🎟️Private Consults
Thursday, July 30, 202610:15 AM - 4:45 PMPrivate IEP Consultation(s) with Staci Zimmerman, M.Ed 🔁🎟️Private Consults
Thursday, July 30, 202610:45 AM - 2:15 PMPrivate Counseling Session(s) with Shannon Barlow, ASF's Licensed Clinical Professional Counselor 🔁🎟️Private Consults
Thursday, July 30, 202611:00 AM - 12:00 PMPowering Progress: Advocating for Angelman SyndromeSocial
Thursday, July 30, 202612:00 PM - 5:00 PMTSC Alliance: Exhibit Hall Exhibits
Thursday, July 30, 202612:00 PM - 5:45 PMTSC Alliance: Sensory LoungeSensory Space
Thursday, July 30, 202612:15 PM - 1:15 PMFamily Conference Lunch on Your OwnOn Own
Thursday, July 30, 20261:00 PM - 4:45 PMSibShop (ages 5-18) 🔁🎟️ (Child Registration)SibShop
Thursday, July 30, 20261:00 PM - 5:00 PMChromosome 15 Clinic Consultations with Dr. Walleigh, Children's Hospital Colorado 🔁ℹ️ (ACTION NEEDED - See "More Info" for registration details)Research
Thursday, July 30, 20261:30 PM - 3:00 PMJust for Dads SocialSocial
Thursday, July 30, 20261:30 PM - 3:00 PMMusic Therapy for Individuals with AS (Caregiver Must Be Present) 🎟️Breakout Session
Thursday, July 30, 20263:00 PM - 4:30 PMJust for Moms SocialSocial
Thursday, July 30, 20263:00 PM - 4:30 PMMusic Therapy for Individuals with AS (Caregiver Must Be Present) 🎟️Breakout Session
Thursday, July 30, 20263:15 PM - 4:45 PM*One-on-One Behavior Consult(s) with Dr. Chris Keary🔁🎟️Private Consults
Thursday, July 30, 20264:30 PM - 5:30 PMAS Natural History Study 20 Year CelebrationReception
Thursday, July 30, 20264:30 PM - 5:30 PMJust For Grandparents SocialSocial
Thursday, July 30, 20265:30 PM - 8:30 PMCamp SOAR – Family Welcome ReceptionReception
Thursday, July 30, 20268:30 PM - 11:00 PMTSC Alliance: Teen LoungeActivity

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Date Time Name Session Type More Info
Friday, July 31, 2026
Friday, July 31, 20267:00 AM - 7:00 PMNatural History Study Visits ℹ️ (View "More Info" for participation details)Research
Friday, July 31, 20267:30 AM - 5:30 PMASF Family Conference Registration & Information DeskRegistration
Friday, July 31, 20267:30 AM - 5:45 PMTSC Alliance: Sensory RoomSensory Space
Friday, July 31, 20268:00 AM - 12:00 PMChromosome 15 Clinic Consultations with Dr. Walleigh, Children's Hospital Colorado 🔁ℹ️ (ACTION NEEDED - See "More Info" for registration details)Research
Friday, July 31, 20268:00 AM - 5:00 PMTSC Alliance: Exhibit Hall Exhibits
Friday, July 31, 20268:00 AM - 5:00 PMASF Exhibitor FairExhibits
Friday, July 31, 20268:30 AM - 5:00 PMProtected Tomorrows: Future Care Planning 🔁Exhibits
Friday, July 31, 20269:00 AM - 9:45 AMTogether We SOAR: Rising Toward a Brighter Future, ASF's Opening Session 🛜General Session
Friday, July 31, 20269:00 AM - 12:00 PMBIG SIB BASH (Ages 5+) 🎟️ (Child Registration)SibShop
Friday, July 31, 20269:00 AM - 9:00 PMPrivate Changing Area (Available Accommodation - All Ages) 
Friday, July 31, 20269:00 AM - 9:00 PMASF Sensory Space and Play ZoneSensory Space
Friday, July 31, 20269:15 AM - 3:15 PM*One-on-One Behavior Consult(s) with Dr. Chris Keary🔁🎟️Private Consults
Friday, July 31, 20269:30 AM - 12:15 PMPrivate IEP Consultation(s) with Staci Zimmerman, M.Ed 🔁🎟️Private Consults
Friday, July 31, 20269:30 AM - 4:15 PMPrivate Counseling Session(s) with Shannon Barlow, ASF's Licensed Clinical Professional Counselor🔁🎟️Private Consults
Friday, July 31, 20269:45 AM - 11:00 AMPipeline to Progress: Angelman Syndrome Therapeutics & Clinical Trial Updates 🛜General Session
Friday, July 31, 202611:00 AM - 11:30 AMMovement Disorders Consultation with Dr. Robert Carson 🔁🎟️Private Consults
Friday, July 31, 202611:00 AM - 11:45 AMThe Importance of Powers of Attorney for Parents and Caregivers Session 🔁🎟️Breakout Session
Friday, July 31, 202611:00 AM - 12:15 PMSOAR: Inside Today’s Science and Tomorrow’s Research Breakthroughs 🛜General Session
Friday, July 31, 202611:30 AM - 12:00 PMMovement Disorders Consultation with Dr. Robert Carson 🔁🎟️Private Consults
Friday, July 31, 202611:45 AM - 12:45 PMThe Importance of Powers of Attorney for Parents and Caregivers Workshop 🔁 Workshop
Friday, July 31, 202612:00 PM - 12:30 PMMovement Disorders Consultation with Dr. Robert Carson 🔁🎟️Private Consults
Friday, July 31, 202612:00 PM - 11:00 PMTSC Alliance: Teen LoungeActivity
Friday, July 31, 202612:15 PM - 1:30 PMFamily Conference Lunch on Your OwnOn Own
Friday, July 31, 202612:30 PM - 1:00 PMMovement Disorders Consultation with Dr. Robert Carson 🔁🎟️Private Consults
Friday, July 31, 20261:00 PM - 2:00 PMMusic Session for Siblings (Ages 5–7) 🎟️Breakout Session
Friday, July 31, 20261:00 PM - 5:00 PMChromosome 15 Clinic Consultations with Dr. Walleigh, Children's Hospital Colorado 🔁ℹ️ (ACTION NEEDED - See "More Info" for registration details)Research
Friday, July 31, 20261:15 PM - 1:45 PMAS Grows Up: Navigating Transitions at Every AgeGeneral Session
Friday, July 31, 20261:15 PM - 2:00 PMEstate Planning Essentials and Guardianship/Conservatorship Options Session 🔁🎟️Breakout Session
Friday, July 31, 20261:55 PM - 2:25 PMAngelman Healthcare for Adolescents and TeensBreakout Session
Friday, July 31, 20261:55 PM - 2:25 PMAngelman Healthcare in Adults (ages 30+)Breakout Session
Friday, July 31, 20261:55 PM - 2:25 PMAngelman Healthcare for Young AdultsBreakout Session
Friday, July 31, 20261:55 PM - 2:25 PMAngelman Healthcare in ChildhoodBreakout Session
Friday, July 31, 20262:00 PM - 3:00 PMEstate Planning Essentials and Guardianship/Conservatorship Options Workshop 🔁🎟️Workshop
Friday, July 31, 20262:15 PM - 3:15 PMMusic Session for Older Siblings (Ages 8–11) 🎟️Breakout Session
Friday, July 31, 20262:35 PM - 3:05 PMMiddle School Through Graduation: Your IEP and Transition JourneyBreakout Session
Friday, July 31, 20262:35 PM - 3:05 PMToileting for BeginnersBreakout Session
Friday, July 31, 20262:35 PM - 3:05 PMMeet Medicare, and other Adult Insurance & BenefitsBreakout Session
Friday, July 31, 20263:15 PM - 3:45 PMIntroduction to Insurance, Waivers & Funding OpportunitiesBreakout Session
Friday, July 31, 20263:15 PM - 3:45 PMEveryday Independence: Supporting Skills Where Life HappensBreakout Session
Friday, July 31, 20263:15 PM - 3:45 PMToileting, Actively TrainingBreakout Session
Friday, July 31, 20263:15 PM - 4:00 PMABLE (Achieving a Better Life Experience) Account Creation Session 🔁🎟️Breakout Session
Friday, July 31, 20263:55 PM - 4:25 PMLeveling Up with Insurance, Waivers, & BenefitsBreakout Session
Friday, July 31, 20263:55 PM - 4:25 PMToileting, Regressions and Starting in AdulthoodBreakout Session
Friday, July 31, 20263:55 PM - 4:25 PMPlay, Practice, Repeat! Growing Everyday Skills for Lifelong Learning in the Early YearsBreakout Session
Friday, July 31, 20264:00 PM - 5:00 PMABLE (Achieving a Better Life Experience) Account Creation Workshop 🔁🎟️Workshop
Friday, July 31, 20264:35 PM - 5:05 PMEarly Intervention & Elementary School: Your IEP JourneyBreakout Session
Friday, July 31, 20264:35 PM - 5:05 PMDay Programs, Social, and Recreational Opportunities Post-High SchoolBreakout Session
Friday, July 31, 20264:35 PM - 5:05 PMSkills That Grow with Them: Supporting OT, PT, and Communication in Everyday LifeBreakout Session
Friday, July 31, 20265:45 PM - 7:00 PMFamily Conference Dinner on Your OwnOn Own
Friday, July 31, 20266:00 PM - 8:15 PMA Special Movie Screening, Paper Bag PlanActivity
Friday, July 31, 20266:15 PM - 7:00 PMAdult Siblings Social, ages 18+Social
Friday, July 31, 20267:00 PM - 8:00 PMPeople of Color SocialSocial
Friday, July 31, 20268:15 PM - 9:15 PMAdults with AS Social (Caregiver Must Be Present)Social

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Date Time Name Session Type More Info
Saturday, August 1, 2026
Saturday, August 1, 20267:00 AM - 5:00 PMASF Family Conference Registration & Information DeskRegistration
Saturday, August 1, 20267:00 AM - 5:30 PMNatural History Study Visits ℹ️ (View "More Info" for participation details)Research
Saturday, August 1, 20267:30 AM - 5:45 PMTSC Alliance: Sensory RoomSensory Space
Saturday, August 1, 20268:00 AM - 5:00 PMTSC Alliance: Exhibit Hall Exhibits
Saturday, August 1, 20268:30 AM - 2:30 PMProtected Tomorrows: Future Care Planning 🔁Exhibits
Saturday, August 1, 20268:30 AM - 2:30 PMASF Exhibitor FairExhibits
Saturday, August 1, 20269:00 AM - 9:45 AMCash Flow Management Session🎟️Breakout Session
Saturday, August 1, 20269:00 AM - 10:30 AMSibShop (ages 5-18) 🔁🎟️ (Child Registration)SibShop
Saturday, August 1, 20269:00 AM - 2:30 PMPrivate IEP Consultation(s) with Staci Zimmerman, M.Ed 🔁🎟️Private Consults
Saturday, August 1, 20269:00 AM - 4:45 PMPrivate Counseling Session(s) with Shannon Barlow, ASF's Licensed Clinical Professional Counselor🔁🎟️Private Consults
Saturday, August 1, 20269:00 AM - 9:00 PMPrivate Changing Area (Available Accommodation - All Ages) 
Saturday, August 1, 20269:00 AM - 9:00 PMASF Sensory Space and Play ZoneSensory Space
Saturday, August 1, 20269:45 AM - 10:45 AMCash Flow Management Workshop🎟️Workshop
Saturday, August 1, 202610:00 AM - 10:30 AMClinical Management of Behaviors & AnxietyGeneral Session
Saturday, August 1, 202610:00 AM - 10:30 AMMovement Disorders Consultation with Dr. Robert Carson 🔁🎟️Private Consults
Saturday, August 1, 202610:30 AM - 11:15 AMSibling Next Gen Leadership Kickoff, ages 15-22🎟️Breakout Session
Saturday, August 1, 202610:30 AM - 11:15 AMThe Ups and Downs of being an Angelman Sibling with Shannon Barlow, ages 5 - 11 🎟️Breakout Session
Saturday, August 1, 202610:40 AM - 11:10 AMMovement Disorders Consultation with Dr. Robert Carson 🔁🎟️Private Consults
Saturday, August 1, 202610:45 AM - 11:15 AMBehind the Behavior: Identifying & Supporting Communication Needs & Sensory DifferencesGeneral Session
Saturday, August 1, 202611:00 AM - 11:45 AMThe Importance of Powers of Attorney for Parents and Caregivers Session 🔁🎟️Breakout Session
Saturday, August 1, 202611:15 AM - 12:00 PMThe Ups and Downs of being an Angelman Sibling with Shannon Barlow, ages 12- 18🎟️Breakout Session
Saturday, August 1, 202611:20 AM - 11:50 AMMovement Disorders Consultation with Dr. Robert Carson 🔁🎟️Private Consults
Saturday, August 1, 202611:30 AM - 12:00 PMBehavioral Approaches and PlansGeneral Session
Saturday, August 1, 202611:45 AM - 12:45 PMThe Importance of Powers of Attorney for Parents and Caregivers Workshop 🔁 Workshop
Saturday, August 1, 202612:00 PM - 1:00 PMFamily Conference Lunch on Your OwnOn Own
Saturday, August 1, 202612:00 PM - 5:00 PMTSC Alliance: Teen LoungeActivity
Saturday, August 1, 20261:00 PM - 1:30 PMThe Relationship Between Cortical Visual Impairment (CVI) and CommunicationGeneral Session
Saturday, August 1, 20261:15 PM - 2:00 PMABLE (Achieving a Better Life Experience) Account Creation Session 🔁🎟️Breakout Session
Saturday, August 1, 20261:30 PM - 2:00 PMSeizures & Movement Disorders in Angelman SyndromeGeneral Session
Saturday, August 1, 20262:00 PM - 3:00 PMABLE (Achieving a Better Life Experience) Account Creation Workshop 🔁🎟️Workshop
Saturday, August 1, 20262:10 PM - 4:00 PMMeet the Neuro Expert - Small Group Sessions🎟️Breakout Session
Saturday, August 1, 20262:15 PM - 3:00 PMBeing a Great Communication Partner to Your Loved One with ASGeneral Session
Saturday, August 1, 20263:15 PM - 4:00 PMBeyond the Dental Chair: Practical Oral Care Strategies for Individuals with Angelman SyndromeGeneral Session
Saturday, August 1, 20263:15 PM - 4:00 PMEstate Planning Essentials and Guardianship/Conservatorship Options Session 🔁🎟️Breakout Session
Saturday, August 1, 20264:00 PM - 5:00 PMEstate Planning Essentials and Guardianship/Conservatorship Options Workshop 🔁🎟️Workshop
Saturday, August 1, 20265:30 PM - 8:30 PMA Night with the Stars – Family Closing ReceptionReception
Saturday, August 1, 20268:30 PM - 11:00 PMTSC Alliance: Teen LoungeActivity