Date
Saturday, August 1, 2026
Time
2:10 PM - 4:00 PM (MDT)
Name
Meet the Neuro Expert - Small Group Sessions
Description

Join leading Angelman syndrome neurologists for an informal small-group discussion focused on seizures and movement disorders. Families are encouraged to ask questions, share experiences, and discuss the management of everyday neurological care.

Session Disclaimer

This session is intended for informal educational discussion and general guidance only and is not a substitute for individualized medical evaluation, diagnosis, or treatment. Families should consult their local neurology and medical care team regarding specific medical concerns or treatment decisions. ASF Clinical Network experts are available for provider-to-provider consultation.

Location Name
Homestead 3
Speakers
Robert Carson, Vanderbuilt University
Jean-Baptiste Le Pichon, Children's Mercy Kansas City
Adriana Maria Tavares Gomes, Angelman Syndrome Foundation
Ronald L Thibert, Mass General Hospital
Diana Walleigh, Childrens Hospital of Colorado
Wilfreda Lindsey, Kennedy Krieger Institute
Session Type
Breakout Session